The presentation will share to our audiences about the current service model provision of haemophilia children in Hong Kong in the era of establishment of Haematology & Oncology service in Hong Kong Children's Hospital.
Since 1992, our seniors taking care of children with cancers and complicated haematological disorders from various hospitals collaborated together and formed the Hong Kong Paediatric Haematology & Oncology Study Group. The treatment protocols of childhood cancers and haematological disorders were then unified. With the great support from the Government, Hospital Authority and our pioneers in the paediatric field, the dream of establishment of Hong Kong Children's Hospital came true since December 2018. With all the solid foundation work being done, this generation of paediatricians and paediatric trainees witness an even more unified care model of these complex haematological and oncology conditions.
For other haematological disorders, namely haemophilia, the approach of share care by hub-and-spoke model with our regional partner paediatric units in Hong Kong is adopted. Patients will receive routine care in the regional partner hospitals with full support from the Hong Kong Children's Hospital. Patients will be reviewed in a multi-disciplinary comprehensive clinic at the Hong Kong Children's Hospital around once to twice a year. This is a win-win situation that patients and families do not need to travel a long way to receive their routine regular care and at the same time, patients and health care provision team in partner units will be also well-supported from the specialists in the field.
This is a representative model of joint multi-disciplinary contributions and collaborations for our suffered children and families by health care professionals in Hong Kong.
